Please help us help Darcie & Evie Chapman, they both suffer from the rare illness Dravet Syndrome and are the only know set of twins known to have the illness. Cruel, heart breaking and sad, every day there parents ask themselves – will they walk, will they talk, who will care for them in years to come! Yet Darcie &
Monthly Archives: May 2015
Rose Blossom Trust Sponsor Form
We have a new events arranged a “Family Fun Day” being held on Saturday 3rd October at Highfield Cricket Club in Wigan This will be a fun day for all the family with cake, bag and gift stalls, beat the goal keeper, raffles and tombola. We will be raising much need funds for Rose Blossom Trust. We are looking for stall
Darcie & Evie went to Alderhey Hospital recently to begin the observational period prior to taking part in the GW pharmaceuticals cannaboid trial.Cannabis oil has been trailed and used in the USA with great results with regards to reducing seizures and the amount if nasty drugs with horrible side effects that kids with Dravet take every day. If accepted onto this
Rose Blossom Trust was set up just two years ago in 2013 in order to raise awareness of a devastating condition called Dravet Syndrome which affects only 1 in 40,000 people. Natalie & Mark Chapman found themselves dealing with the devastating news that there beautiful twin girls – Darcie Rose and Evie Blossom were both suffering from this terrible illness – the